Wednesday, December 23, 2015

Ah rahighty-(thanks mconahay...) Leg update

legs and keyboards

Dear Diary...
The  last twelve months at least, or maybe longer, down at the beach where I will Continue to speedsail with the top end speedsailing boards I have finally been able to afford (cos I am getting over chop and short hops and junps- YUK!),

  •  there was a feeling that the down haul effort in rigging  a sail for windsurfing- NO- SPEEDSAILING,  was getting increasingly harder to do while rigging up for Speed Sailing on my short sailboards, and that was, that is wow, - what the...!$%#!!!!

Rigging up-bIt is the main thing before hitting the water!

Hmm. So let's have a little look..

Okay. A little more Effort needed- or in what way is my MS can be affecting me over the duration...
I know wrong sub text, it (MS) Will Not Go Away..

Alrighty- it is hard to impossible to use the right leg to down haul a 5 to 8 m2 sail properly [to FULL strength as I once knew!] now and the left leg right leg combo- still need support- action/reaction right!!?- I mean the instructions are Tension TO HERE .... and as I am a Picaso as to perfection- .... and I do as what the wind says, and I hate house painting anyway...

Ok- preparation...

Ok- so now I have/bought a downhaul crank, [FIXED that MS!] and I should be able to use arm and shoulders for the next ten years... I hope and wish!!

Think I have got around it a bit.

And NOW  the right leg is still WEAK, even going up/down stairs. Weird as, "STRAIGHT LEG to GROUND..." aint right- what am I doing?!


And I am NOW having to think which leg forward, and even more - STEPPING over an obstacle- I really have to watch where I am going so not to leave the left foot last-- It Has to be be first as I cannot quite manage to casually drag it over a sill! That is- when on a ship, there are heaps of water  tight  doors--- Step up AND now, and dog the door after you too...  Lotsa co-ordination for that more than once a day (ah, exercise?).
But if in a hurry- nah, seems ok. That is adapation.. I like that at least!
And the right leg seems to be sloppy walking- is it MS?

Anyway,carrying on as though it aint affecting the life style, fmnk my MS!

Friday, August 28, 2015

symptoms kinds recognised

symptoms kinds recognised

Quick listing.
double vision sort of 1984, but very tired
Numbness noticed 2005-2006- hmm thats weird
loss of detecting colour intensity e.g. redness, 2008
Lhermitts- definitely by 2010

Loss of sensation in any area of body
Lhermitte’s sign 
Electrical sensation which travels down back and into the limbs when head is flexed forward, may only cause mild tingling in limbs
Vision problems
  • Optic neuritis: an inflammation of optic nerve causing reduced vision or blindness, often sudden
  • Double vision or diplopia
  • Reduced contrast sensitivity
  • Internuclear ophthalmoplegia or INO, resulting in blurred vision
Feeling of overwhelming tiredness which can be severe and debilitating
Bladder dysfunction
Increased urinary frequency, urgency, dribbling, hesitancy, or incontinence
  • Paresthesia: tingling or “pins and needles”
  • Somatic pain
  • Headache (may be comorbid with MS)
  • Trigeminal neuralgia: pain in the nerves of the face
  • Paraplegia: weakness in both legs
  • Possible weakness in legs, arms, hands, hip flexors, shins, or other muscle groups